This boy who will die if he falls asleep

A young British boy has an incredibly unusual genetic disorder called Ondine’s Curse, which means that if he falls asleep, he’ll stop breathing.

Liam Derbyshire is a medical miracle. He was born with a rare case that threatened his life to the point that his parents were informed by doctors that he had only six weeks to live.

By 2011, Liam turned eleven years old. He still needed a life support to keep him alive because if it weren’t for one, the boy would die in his sleep.

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Liam suffers a disease called hypoventilation, known colloquially as Ondine’s Curse. This is based on the myth where a jilted fairy cursed her lover by making him forget to breathe should he fall asleep. But Liam’s life isn’t anything close to a legend, it’s more of a daily struggle that he bravely pursues every day.

Every day, Liam has a tracheostomy breathing tube in his throat. His parents need to keep a close eye on him so he doesn’t fall into sleep without their supervision. In addition to that, Liam suffered pediatric cancer as a young child but went into remission not long after.

Even with all the issues the young boy has faced, he still remains a happy child.

“Every day the doctors are amazed at how fit he is. He has defied all the odds,” his mother, Kim, said.

taborlowres
Dear Sister and Brother,

1. God never fails.

2. God will never turn his back on you.

3. I pray that whatever you are going through in your life, God will show you a way through it and that you be showered with His mercy and grace.

A relationship starts with communication…remember to talk to Jesus daily..

— Aaron Tabor, MD, Founder of Jesus Daily®

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